Rare Diseases

Conference Coverage

2018: A banner year for hematology drug approvals

Author:: Sharon Worcester

Publish date: December 5, 2018

SAN DIEGO – There have been 32 new hematology drug approvals and the year isn’t over yet.

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What's Your Diagnosis?

Skin-Colored Papules on the Chest

Author:: LT Aaron S. Cantor, MD; LCDR Michael L. Crandall, MD, FAAD; LCDR Leah K. Spring, DO, FAAD

An otherwise healthy male presents with multiple smooth uniform painless cystic papules scattered across his central chest.

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Video

Technology offers new tools, challenges for rare-disease patients

Author:: Heidi Splete

Publish date: October 26, 2018

WASHINGTON – Rare disease research continues to expand, but many patients struggle to access the latest...

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Video

Education and support enhance care for rare-disease patients

Author:: Heidi Splete

Publish date: October 26, 2018

WASHINGTON – Primary care clinicians are important to the ongoing health of patients with rare diseases....

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News from NORD

Progeria Research Foundation Scientific Workshop Planned

Publish date: February 20, 2018

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News from NORD

Osteogenesis Imperfecta Foundation Plans Conference

Publish date: February 20, 2018

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News from NORD

One-Day Conference Planned on Effects of Necrotizing Enterocolitis on Premature Infants and Families

Publish date: February 20, 2018

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News from NORD

MDS Foundation Hosts Family/Caregiver Forums

Publish date: February 20, 2018

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News from NORD

National Tissue Biobank Established for Coats Disease

Publish date: February 20, 2018

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News from NORD

Opioid Epidemic Impacts Patients With Sarcoidosis

Publish date: February 12, 2018

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